Due to experiencing this in his own social circles, Theo has become concerned about how difficult it is to find reliable information about Parkinson’s Disease. To help those searching, he wants to offer easy access to good information.
Where to find reliable information on Parkinson’s Disease
- Parkinson’s Foundation: https://www.parkinson.org An excellent web site with resources. They also have a helpline where you can ask questions you need help with.
- Davis Phinney Foundation: https://davisphinneyfoundation.org/ Free books about living with PD, a catalogue of exercises and therapy sessions recorded that you can watch at any time. As well as live zoom classes that are free to join.
- The Michael J.Fox Foundation: https://www.strive.group/ A worldwide list of PD studies
- American Parkinson’s Disease Association (APDA): helps people connect with local resources: https://www.apdaparkinson.org/
- The Brian Grant Foundation empowers people impacted by Parkinson’s disease to lead active and fulfilling lives. Their mission is to educate people living with PD: https://briangrant.org/about/
- Information from experience on e.g. https://www.myparkinsonsteam.com/ and https://www.youtube.com/watch?v=SRag6ZbYedk
- Checklist What to take care of when first diagnosed
International Parkinson organisations
Parkinson’s UK: https://www.parkinsons.org.uk/
Parkinson’s Care and Support UK: https://parkinsonscare.org.uk/loss-of-facial-expression/
Dutch Parkinson Society: useful information for people with PD and their caregivers, in Dutch: https://www.parkinson-vereniging.nl/
Dutch Parkinson Fund (Research): https://parkinsonfonds.nl/
Technology
Guide using Apple watch series 11, 12, Ultra 3 in support of managing Parkinson’s Disease: 2026 07 19 Apple_Watch_Guide_V5
Apple Support: General Apple Watch setup and use: https://support.apple.com/watch
StrivePD: Medication management and symptom tracking: https://www.strive.group/